The Children's Cardiomyopathy Foundation (CCF) is a not-for-profit public charity with tax-exempt status. As the only organization in the country whose primary focus is pediatric cardiomyopathy, the Foundation takes a leadership position in broadening the understanding of the disease. The Foundation plans to be a funding partner and the primary advocate for studies into the causes, diagnosis, treatment, and cure of pediatric cardiomyopathy. The Foundation hopes to also fill the void in physician and patient education and support.
The Foundation's policies and activities are overseen by a Board of Trustees comprised of business professionals as well as philanthropists and volunteers. A Medical Advisory Board consisting of acknowledged leaders in the field of pediatric cardiology provide high-level medical and scientific guidance on the Foundation's research goals and priorities. The Foundation is active in four main areas: (a) research, (b) physician and patient education, (c) public awareness and advocacy, and (d) family support.