Children's Cardiomyopathy Foundation
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CCF Resources & Programs

The Children's Cardiomyopathy Foundation (CCF) is a national non-profit organization focused on pediatric cardiomyopathy. Our mission is to accelerate the search for a cure through research, education, and increased awareness and advocacy. View our newsletter, Heart to Heart for highlights of CCF’s programs, research developments, and events.

CCF offers a wide range of support services and resources to assist physicians and families. We encourage you and the families that you manage to register with CCF and make use of all the resources that CCF has to offer. There is no fee associated with membership. A complete listing of CCF’s family services and resources can be viewed here.

Resources for Families

  • Patient Education Materials
    CCF’s website offers printed, online, and audio-visual materials on pediatric cardiomyopathy. An order form is downloadable here. Some materials are also available in Spanish.
  • Web resources
    There are many helpful resource links and downloadable patient materials on our website.
  • Online Community
    CCF Connect is a private online community that provides members the opportunity to connect with others, offer support and share information on pediatric cardiomyopathy.

Programs for Physicians

  • Research Grant Program
    CCF offers one-year research grants (up to $50,000) for basic, clinical, population/epidemiologic or translational studies focused on primary cardiomyopathy (dilated, hypertrophic, restrictive, left ventricular non-compaction or arrhythmogenic right ventricular cardiomyopathy) in children under age 18. For details on eligibility and the application process, click here.
  • Accredited Centers of Care Program
    CCF’s Accredited Center of Care Program recognizes medical centers that provide high-quality cardiac care and specialized disease management to children living with cardiomyopathy. Centers can review the eligibility criteria and submit an application for consideration.

For more information or assistance, please contact us.