Children's Cardiomyopathy Foundation
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COPING & HEALING

CARING FOR A CHILD:
DEVELOPMENTAL DELAYS

Most children with cardiomyopathy do not have any physical or mental limitations that would prevent them from participating in playgroups or school programs. In rare cases, a child may fall behind developmentally due to prolonged hospitalization from complications of the disease. If your child is under the age of 3 and may have minor delays, he/she may qualify for Early Intervention Services (EIS). Early Intervention is a state sponsored program that provides physical, occupational, speech or feeding therapy through public and private agencies to children that qualify for the program (show a 33% delay in one developmental area or 25% delay in 2 areas). If your child qualifies, evaluations and all or some therapy sessions are covered by the state. Additional information on a state agency that serves children with special needs is available through your hospital's social worker or by checking the State Resource Sheet.

If your child is over 3, your child's school system can help evaluate with physical, intellectual and psychological testing and recommend special public services. If testing indicates that your child would benefit from related educational services, an individualized educational program (IEP) can be developed with your child's teacher and principal.