Children's Cardiomyopathy Foundation
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COPING & HEALING

TENDING TO A CHILD IN THE HOSPITAL:
PREPARING TO GO HOME

When it comes time to leave the hospital, you will need to consider how to care for your child at home. Your child's cardiologist will provide guidelines on diet, medications, rest, returning to school, exercise restrictions, and required follow up visits. At some point, a social worker may also visit to offer assistance with at home care, insurance or additional therapy. They can arrange a home care agency to provide you with a visiting nurse, physical or occupational therapists and any necessary medical equipment (i.e. oxygen tanks, feeding pumps). Additionally, they can recommend a counselor or support group to address your psychological or social concerns.

Once your child is home, a great deal of understanding, reassurance and extra loving is needed before family life returns to normal. During the first week, your child may be clingy, more fearful or overly concerned about his/her health. His/her eating and sleeping habits may also be different after hospitalization. In addition, you may notice a change in your child's relationship with his/her siblings. It is not uncommon for siblings to feel neglected or resentful of the extra attention given to your hospitalized child. With time and patience, your child should be able to readjust to family and school life without difficulties.