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CCF ENDORSES HEARTS ACT

Dear CCF Friends and Families,


Congressman Frank Pallone &
Lisa Yue, CCF President and Founder

We have some exciting news to share with you. Last week Representative Frank Pallone (D-NJ) introduced the Cardiomyopathy Health Education, Awareness, Risk Assessment and Training in the Schools (HEARTS) Act to increase awareness of cardiomyopathy and the risk of sudden cardiac arrest (SCA) among parents, schools and health professionals.

Cardiomyopathy is the number one cause of SCA, and most often SCA occurs on school property because an at-risk child is undiagnosed. The HEARTS Act will help to identify more children with cardiomyopathy before they fall victim to sudden cardiac death. There has never been a bill issued on cardiomyopathy and the introduction of this life-saving legislation is an important milestone for CCF.

Over the last several months CCF has actively worked in partnership with Congressman Pallone on every component of this bill. We have kept all of our cardiomyopathy families in mind as we have worked on this legislation. Congressman Pallone commended CCF for our excellent efforts in raising awareness about sudden cardiac arrest in children, and he expressed his gratitude for the work we have done. Additional information can be found on CCF's press release announcing the bill.

Getting more children with cardiomyopathy properly diagnosed and treated remains a top priority for CCF. The introduction of this bill is the first step of several before it can become a law. In the coming months we will work closely with Congressman Pallone to obtain legislative co-sponsors for this bill. We will need your support as well. You can help by calling and writing your representatives to ask for their support of Bill H.R. 3625. It is motivating to think that, together, we have the ability to save the lives of thousands of children with cardiomyopathy.

Sincerely,

Lisa Yue
President and Founder

Click below for additional information:

Representative Pallone's Press Release

Stakeholder Letter of Support

HEARTS Act Bill H.R. 3625