Children's Cardiomyopathy Foundation



Cardiomyopathy is the leading cause of sudden cardiac arrest in the young. Getting at-risk children with cardiomyopathy identified, properly diagnosed and appropriately treated is a top priority for the Children’s Cardiomyopathy Foundation (CCF).

That’s why we took a leadership role in working with our Congressional champions to introduce the Cardiomyopathy Health, Education, Awareness, Risk Assessment and Training in the Schools (HEARTS) Act. This important legislation would increase awareness of cardiomyopathy and the risk of sudden cardiac arrest among parents, schools and health professionals. The hope is to improve survival rates of high-risk children with cardiomyopathy and prevent premature deaths from sudden cardiac arrests.

Help Support the Cardiomyopathy HEARTS Act

CCF is working with members of Congress every day to move this critical legislation forward. But they need to hear from you! You can make a difference by asking your Senators and Representative to cosponsor the HEARTS Act. The more members of Congress that cosponsor a bill, the more likely it will move through Congress and pass into law. As members of Congress have their recess during the month of August, now is the best time to contact them in their home state.

Send a personalized email to your Member of Congress

Studies have shown that personal outreach is the best way to have an impact on Congressional leaders. They want to hear from their constituents - the people who will vote for them. Please share this page with your friends, family, colleagues and anyone else who might want to support this bill.

For more information on the Cardiomyopathy HEARTS Act - including text of the legislation, CCF’s press release, and a list of supporting organizations - please visit our Cardiomyopathy HEARTS Act page. If you have any questions, please contact Sheila Gibbons.