Children's Cardiomyopathy Foundation



Cardiomyopathy is the leading cause of sudden cardiac arrest in the young. Getting at-risk children with cardiomyopathy identified, properly diagnosed and appropriately treated is a top priority for the Children's Cardiomyopathy Foundation. CCF has taken a leadership role in working with Congressional champions to introduce several bills focused on cardiomyopathy and sudden cardiac arrest:

  • Cardiomyopathy Health, Education, Awareness, Risk Assessment and Training in the Schools (Cardiomyopathy HEARTS) Act
  • Teaching Children to Save Lives Act
  • Supporting Athletes, Families and Educators to Protect the Lives of Athletic Youth (SAFE PLAY) Act

These bills play a critical role in raising awareness among parents, schools and health professionals of high-risk cardiac conditions such as cardiomyopathy that may lead to sudden cardiac death.

Help Support Cardiomyopathy Related Legislation

CCF continues to advocate for increased awareness of cardiomyopathy and for legislation that will protect undiagnosed, at-risk children from sudden cardiac death. You can help by asking your senators and representatives to cosponsor cardiomyopathy-related bills. Click on the link below to send a personalized email to your senators and representatives and tell them how important this bill is to you.

Take Action on the Cardiomyopathy HEARTS Act (H.R. 3880)

Congressional leaders want to hear from their constituents so your letters do matter. By collectively giving voice to this issue, we can improve survival rates and prevent premature deaths.