An important part of CCF's mission is to provide accessible educational materials that are current and easy-to-understand for patients, parents/caregivers and medical practitioners. The goal is empower parents with basic information about pediatric cardiomyopathy and offer practical guidelines on living with the disease.

CCF works with various healthcare organizations and medical societies to develop such materials in print and electronic formats. All materials have been carefully reviewed by CCF’s medical advisors and in most cases are offered free of charge.

To place an order for any of the below items, please DOWNLOAD ORDER FORM (pdf) and fax to CCF at 201-227-7016. For international orders of more than 5 pieces, there is a shipping and handling charge.

Comprensión de la miocardiopatía pediátrica
Este folleto de descripción general de 14 páginas con información adjunta sobre la miocardiopatía dilatada, hipertrófica y restrictiva fue diseñado para brindar información esencial a padres, cuidadores y profesionales de asistencia médica.

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Miocardiopatía pediátrica PDF
Miocardiopatía dilatada PDF
Miocardiopatía hipertrófica PDF
Miocardiopatía restrictiva PDF
Miocardiopatía de ventrículo izquierdo no compactado PDF

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Folleto de descripción general de la CCF
Este folleto tríptico brinda una presentación de la fundación y una breve descripción general de la misión, los programas y los servicios de la CCF relacionados con la enfermedad.


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Ensuring a Good Learning Environment –
A Cardiomyopathy School Resource Kit

This resource kit is intended to educate school staff about the disease and guide parents in working with their child's school to obtain the appropriate accommodations and modifications. The kit includes two guidebooks, a sample school letter and templates for a healthcare plan, 504 education plan and emergency care plan.

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Guide for School Personnel PDF
Guide for Parents PDF
Sample School Plans and Letters PDF

Cardio What? - A Kids’ Guide to Cardiomyopathy
CCF and the National Society of Genetic Counselors (NSGC) have partnered to develop this 29-page booklet to help children better understand their own and/or their family member’s diagnosis of cardiomyopathy. Written by genetic counselors with CCF’s input, the booklet uses simple language, colorful illustrations, and fun activities to teach children the basics about the disease.


Pediatric Heart Transplants: A Guide for Patients and Families
CCF has partnered with the Pediatric Heart Transplant Foundation to develop a comprehensive guidebook to explain the entire heart transplant process from assessment and listing to surgery and post transplant care. This guidebook draws on the experience and knowledge of the top pediatric heart transplant specialists in the U.S. and Canada.

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Pediatric Heart Transplant Guide (Parts 1-4) PDF
Part 1: Before the Transplant PDF
Part 2: The Transplant PDF
Part 3: After the Transplant PDF
Part 4: Additional Resources PDF


Introduction to Pediatric Cardiomyopathies
CCF has partnered with the American Heart Association (AHA) and the National Organization for Rare Disorders (NORD) to bring you the most up-to-date information on the disease. Working in collaboration with the top cardiomyopathy specialists in the U.S., this information was written specifically for the lay public and is complimentary to CCF’s other patient education materials.


Pediatric Cardiomyopathy Disease Report
CCF has partnered with the National Organization for Rare Disorders to develop this rare disease report on pediatric cardiomyopathy. Written in understandable language, the report covers information about the various disease forms, symptoms, affected population, causes, and standard and investigative therapies. The report also provides a listing of support organizations and reference articles.