DISCLAIMER & PRIVACY POLICY

The Children’s Cardiomyopathy Foundation (CCF) web site is designed for general informational and educational purposes. All information contained on this web site and communication from the discussion forum should in no way be taken to be the provision or practice of medical, nursing or professional health-care advice or services. The information supplied on this site is not intended to be used for diagnostic or treatment purposes and should not replace an individual's medical consultation. CCF always recommends that a physician or other healthcare provider be contacted for professional medical advice.

Although physicians have reviewed the medical content on this site, CCF makes no guarantees as to the accuracy, completeness, appropriateness, or timeliness of any opinions, advice, services or other information provided in the site’s content and discussion forum. Likewise, CCF accepts no responsibility and disclaims all liability for any decision made or action taken by you or anyone else based upon material contained within this website or within the discussion forum messages.

CCF is committed to protecting your privacy and maintaining the confidentiality of your personal information. All information gathered will only be used for internal purposes, unless otherwise stated on the web site. Access to personal information will be limited to CCF's trustees, officers, and committee members who may need to use such information for approved and supervised projects.

Personal information on users may be submitted through on-line forms to make a donation, to volunteer, to join the support network, or to provide feedback. We define personal information to include: name, contact details, your child's medical background and the content of your correspondence with CCF. When contacting CCF, your
e-mail may be forwarded through the site to the appropriate person within the organization for response. As a result, CCF's home office and the responding individual may retain copies of your correspondence.

If you join the optional support network, your contact details may be distributed to other registered families. However, the personal information that you provide on your child's medical background will only be used internally to develop better content and programs for affected families. We may in special instances share this medical information with selected physicians and researchers in an aggregate, anonymous form, which will not contain any personally identifiable information about you or your child.

In addition to collecting the above information, C.C. F. may also collect non-personal, aggregated information to tract usage of our web site. This includes statistics showing the number of site visitors, the requests for particular files on the site, the countries that requests are coming from, sites that users are coming from and going to, and browser and operating systems used. The collection of this information allows us to improve the site's content and scope.

All information described above is stored on restricted database servers. Any personal information obtained will not be sold, rented, traded or released to any third party for commercial use without your permission.

CCF provides links to other sites that may be of interest to users of our site. These listings do not reflect CCF's endorsement of the organization or their products and services. CCF is also not responsible for the content and privacy policies of such third party sites. Similarly, any physician referral through the discussion forum is provided as a courtesy only and does not imply endorsement or recommendation by CCF.

All material contained on this web site and the discussion forum is protected by copyright law. No part of this website may be reproduced for commercial purposes without the consent of the Children's Cardiomyopathy Foundation (CCF). Reprints of the site may be distributed for personal use if proper acknowledgement is made.

If you have any questions about CCF's disclaimers or privacy policies, please contact us at info@childrenscardiomyopathy.org