Children's Cardiomyopathy Foundation



The Children's Cardiomyopathy Foundation (CCF) hopes that this website proves to be a valuable tool for patients, doctors, the general public and anyone else seeking information about pediatric cardiomyopathy.

The content on CCF's website is provided with the understanding that the material is for informational and educational purposes only. It is not intended to provide medical advice or recommendations on diagnosis or treatment of pediatric cardiomyopathy. Cardiomyopathy is a complex disease that can only be properly diagnosed and managed by skilled and trained healthcare professionals. The information contained on this site should not replace necessary consultations with qualified healthcare professionals.

Every effort has been made to ensure that the information on this website is accurate and up-to-date, but CCF makes no guarantees as to the accuracy, completeness, appropriateness or timeliness of such information. In addition, CCF accepts no responsibility and disclaims all liability for any decisions made or actions taken based upon material obtained from CCF. It is strongly recommended that persons wishing to use information obtained on this website to first consult with their medical practitioner.


CCF is committed to protecting the privacy of our site users and maintaining the confidentiality of all collected personal information. Personal information on users can be submitted through on-line forms to make a donation, to volunteer, to provide feedback or to register with CCF. Access to personal information will be limited to certain CCF staff members.

If you have registered with CCF as a member, your personal information, including your contact details and your child's medical background, will be safeguarded. If you have given your consent, your contact details may be shared with other registered families for networking and support purposes. The information that you provide on your child's medical background may be used for internal research purposes and in the rare instance that it is shared with outside parties, it will only be in an aggregate, anonymous format without any identifiable information. No personal information will be released without your prior consent.

CCF may also collect non-personal, aggregated information to tract usage of our website. This includes statistics showing the number of site visitors, requests for particular files on the site, the countries that requests are coming from, sites that users are coming from and going to, and browser and operating systems used. The collection of this information allows us to improve the site's content and scope.


All information described above is stored on restricted database servers. Any personal information obtained will not be sold, rented, traded or released to any third party for commercial use without your permission.


CCF's site contains certain links to other websites whose content might be of interest to our site users. CCF is not responsible for the material at such linked sites, and presence of such a link does not constitute an endorsement by CCF of material on the linked site.


All material contained on this web site is protected by copyright law. No part of this website may be reproduced for commercial purposes without the consent of the Children's Cardiomyopathy Foundation (CCF). Reprints of site pages may be distributed on a personal basis if proper acknowledgement is made.