LINKS & RESOURCES:
American Society of Transplantation
Provides a patient section with downloadable patient education brochures in English and Spanish.
A comprehensive source of transplant information that includes news, government and professional articles on transplantation.
Children's Organ Transplant Association
Helps children and young adults in need of a transplant by providing fundraising assistance and family support.
Works toward education and awareness of the need for organ donation. This site has a link to register to be an organ donor in the United States.
International Pediatric Transplant Association
Professional medical organization dedicated to advancing the science and practice of pediatric transplantation and advocating for the rights of children who need transplantation.
National Foundation for Transplants
Offers fundraising assistance for transplant candidates and recipients worldwide.
Transplant Assistance Fund
Offers direct financial assistance, fundraising guidance and support to families in need of a transplant.
Thoratec - "About Ventricular Assist Device Therapy"
Company specializing in medical devices
for circulatory support used as a bridge-to-transplant option. Site includes a section for patients and caregivers.
Sponsored by UNOS, site provides patient information on before, during and after a transplant including a section on pediatric transplants.
Educational web site based at the
University of Michigan serving the world transplant community.
Features news, personal stories, references, Q&A.
Network for Organ Sharing (UNOS)
Mission is to improve the effectiveness
of organ donation, procurement, distribution, and transplantation.
Includes patient section focused on waiting and living
with a transplant.
United Network for Organ Sharing – Organ Transplants: What Every Kid Needs to Know
This child friendly book provides general information on the transplantation process and aims to help children and families feel more at ease.
United Network for Organ Sharing – Talking About Transplants: What Every Patient Needs to Know
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Developed by UNOS parent advisors, this book covers topics related to transplantation, such as preparing for transplant, financial considerations, life after transplant, and promoting organ donation.