Children's Cardiomyopathy Foundation
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SUPPORT SERVICES

LINKS & RESOURCES:
HEART TRANSPLANTS

American Society of Transplantation
Provides a patient section with downloadable patient education brochures in English and Spanish.

Centerspan
A comprehensive source of transplant information that includes news, government and professional articles on transplantation.

Children's Organ Transplant Association
Helps children and young adults in need of a transplant by providing fundraising assistance and family support.

Donate Life
Works toward education and awareness of the need for organ donation. This site has a link to register to be an organ donor in the United States.

International Pediatric Transplant Association
Professional medical organization dedicated to advancing the science and practice of pediatric transplantation and advocating for the rights of children who need transplantation.

National Foundation for Transplants
Offers fundraising assistance for transplant candidates and recipients worldwide.

National Transplant Assistance Fund
Offers direct financial assistance, fundraising guidance and support to families in need of a transplant.

Thoratec - "About Ventricular Assist Device Therapy"
Company specializing in medical devices for circulatory support used as a bridge-to-transplant option. Site includes a section for patients and caregivers.

Transplant Living
Sponsored by UNOS, site provides patient information on before, during and after a transplant including a section on pediatric transplants.

TransWeb
Educational web site based at the University of Michigan serving the world transplant community. Features news, personal stories, references, Q&A.

United Network for Organ Sharing (UNOS)
Mission is to improve the effectiveness of organ donation, procurement, distribution, and transplantation. Includes patient section focused on waiting and living with a transplant.

United Network for Organ Sharing – Organ Transplants: What Every Kid Needs to Know
This child friendly book provides general information on the transplantation process and aims to help children and families feel more at ease.

United Network for Organ Sharing – Talking About Transplants: What Every Patient Needs to Know
Developed by UNOS parent advisors, this book covers topics related to transplantation, such as preparing for transplant, financial considerations, life after transplant, and promoting organ donation.

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