SUPPORT SERVICES

LINKS & RESOURCES:
US SUPPORT NETWORKS

Congenital Heart Information Network
Well recognized site providing information, support services, and resources for families, adults and professionals dealing with congenital heart diseases. Contains links to other sites, chat rooms, book reviews, and bereavement resources.

Kids With Heart - National Association For Children's Heart Disorder
Provides an online bookstore on heart related books, nationwide parent matching to parents of children with congenital heart disease.

Pediheart
Offers "The KidZone" and "Parent's Place" for kids and parents to learn about the heart and join in online discussion.

Massachusetts Heart Coalition
Offers support services and plans awareness activities to raise profile of those coping with congenital heart defects.

Little Hearts
A non-profit support organization for families affected by congenital heart defects.

Birth Defect Research For Children
Provides fact sheets, information about various birth defects. Also offers parent matching opportunities, informational resources and links, and recommended books.

Friend's Health Connection
Nonprofit support network that connects people with similar health problems for mutual support.

MUMS - Mothers United For Moral Support
National parent-to-parent matching network.

Our Kids
Site offering support and practical advice for parents caring for kids with physical or mental disabilities and delays.

Special Child
Provides educational resources and emotional support to parents and caregivers of children with special needs (i.e. mitochondrial myopathy, Noonan syndrome).

Children's Heart Foundation
Nevada based support group focused on improving the care and quality of life for children with heart problems.