LINKS & RESOURCES:
U.S. SUPPORT NETWORKS
Congenital
Heart Information Network
Well recognized site providing information, support services, and resources
for families, adults and professionals dealing with congenital heart diseases.
Contains links to other sites, chat rooms, book reviews, and bereavement resources.
Kids with Heart - National Association for Children's Heart Disorder
Provides an online bookstore on heart related books, nationwide parent matching
to parents of children with congenital heart disease.
Pediheart
Offers "The KidZone" and "Parent's Place" for kids and parents to learn about the heart and join in online discussion.
Little Hearts
A non-profit support organization for families affected by congenital heart defects.
Birth Defect Research for Children
Provides fact sheets, information about various birth defects. Also offers
parent matching opportunities, informational resources and links, and recommended
books.
Friend's Health Connection
Nonprofit support network that connects people with similar health problems
for mutual support.
MUMS - Mothers United for Moral Support
National parent-to-parent matching network.
Our Kids
Site offering support and practical advice for parents caring for kids with
physical or mental disabilities and delays.
Special
Child
Provides educational resources and emotional support to parents and caregivers
of children with special needs (i.e. mitochondrial myopathy, Noonan syndrome).
Children's Heart Foundation
Nevada based support group focused on improving the care and quality of life
for children with heart problems.
INTERNATIONAL SUPPORT NETWORKS
Cardiomyopathy Association of Australia
National Heart Foundation of Australia
Heartkids NSW Inc. (Australia)
Nos Enfants Cardiaques ASBL (Belgium)
Children's Heart Society (Canada)
CHASE - The Children's Heart Association for Support and Education (Canada)
Heart Beats Children's Society of Calgary (Canada)
Association Nationale Des Cardiaques Congenitaux (France)
Interessengemeinschaft Das Herzkranke Kind E. V. (Germany)
Heart Children New Zealand
Hartedroom (Netherlands)
Heartline (UK)
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