The Children's Cardiomyopathy Foundation (CCF) is pleased to offer webinars as a patient support resource. Webinars are available at no cost and are open to parents, friends, relatives, and professionals registered with CCF.
Overview of Clinical Trials
Jennifer Su, MD
Children’s Hospital Los Angeles
December 6, 2023 | 12:00 pm ET
Recorded webinar sessions are available to those unable to attend live. Click on the below links to view past webinars.
Genetic Testing and Gene Therapy: Updates and Future Directions in Pediatric Cardiomyopathy
Andrew Landstrom, MD, PhD
Duke Children’s Hospital
November 1, 2023
Sudden Cardiac Arrest: Education & Prevention for Pediatric Cardiomyopathy Families
Robert Whitehill, MD
Children’s Healthcare of Atlanta
October 17, 2023
Pediatric Cardiomyopathy: What Newly Diagnosed Families Need to Know
Betsy Blume, MD
Boston Children’s Hospital
September 14, 2023
Exercise, Sports, & Cardiac Rehabilitation Considerations for Children with Cardiomyopathy
Jonathan Edelson, MD
Children’s Hospital of Philadelphia
June 14, 2023
ICD Considerations for Pediatric Cardiomyopathy Patients
Heather Giacone, MD
Lauren Schneider, PsyD
Lucile Packard Children’s Hospital
May 17, 2023
Updates in Medical Management for Pediatric Heart Failure Patients
Neha Bansal, MD
Mount Sinai Kravis Children’s Hospital
February 15, 2023
Peer Support for Patients Transitioning to Adult Care
Samantha J. Anthony, PhD, MSW
Jia Lin, MPH
Hospital for Sick Children Research Institute
January 24, 2023
Cardiomyopathy: Is It In Our Genes?
Wendy Chung, MD, PhD
Columbia University Irving Medical Center New York-Presbyterian Hospital
November 16, 2022
Therapeutic Approach to Pediatric Cardiomyopathy Using Gene Therapy
Barry J. Byrne, MD, PhD
University of Florida Powell Center and Child Health Research Institute
September 14, 2022
Understanding Natural History Studies
Elfriede Pahl, MD, FACC, FAHA, FAPP
Northwestern Feinberg School of Medicine and Ann and Robert H. Lurie Children’s Hospital
July 21, 2022
Evaluating for ICD Placement & Psychosocial Considerations Related to ICD Placement
Johannes von Alvensleben, M.D.
Children's Hospital Colorado
April 12, 2022
Pediatric Cardiomyopathy: Transitioning to Adult Care
Anjali Owens, M.D.
Kimberly Lin, M.D.
Children's Hospital of Philadelphia
February 22, 2022
Hypertrophic Cardiomyopathy and Youth Sports Participation
Jeffrey Kim, M.D.
Texas Children's Hospital
December 2, 2021
Emotional Side Effects of Cardiomyopathy in Teens
Jami N. Gross, Ph.D.
Children's Mercy Kansas City
September 24, 2021
The Role of Research in Improving Care for Patients with Pediatric Cardiomyopathy
Dr. Daphne Hsu, M.D.
Children's Hospital at Montefiore
August 17, 2021
Heart Failure and Ventricular Assist Devices
Neha Bansal, M.D.
Children's Hospital of Montefiore
May 5, 2021
Updates in Living with Heart Failure for the Pediatric Cardiomyopathy Community
Rakesh Singh, M.D., M.S.
Hassenfeld Children's Hospital at NYU Langone
February 18, 2021