WEBINARS
The Children's Cardiomyopathy Foundation (CCF) is pleased to offer webinars as a patient support resource. Webinars are available at no cost and are open to parents, friends, relatives, and professionals registered with CCF.
Recorded webinar sessions are available to those unable to attend live. Click on the below links to view past webinars.
2021
Updates in Living with Heart Failure for the Pediatric Cardiomyopathy Community
Dr. Rakesh Singh
Hassenfeld Children's Hospital at NYU Langone
February 18, 2021
2020
Updates in Genetic Testing Related to Pediatric Cardiomyopathy
Dr. Wendy Chung & Dr. Teresa Lee
New York Presbyterian Morgan Stanley Children’s Hospital
October 22, 2020
Supporting Your Diagnosed Child: Suggestions from a Patient
Mike Papale
In A Heartbeat
September 17, 2020
Research Study Update: Psychological Stress in Pediatric Cardiac Patients and Caregivers During COVID-19
Melissa Cousino, Ph.D.
Kurt Schumacher, MD
C.S. Mott Children’s Hospital
August 19, 2020
COVID-19 Updates for Cardiomyopathy Families
Dr. Daphne Hsu & Dr. Neha Bansal
Children's Hospital of Montefiore
June 4, 2020
Emotional Considerations for Pediatric Cardiomyopathy Families During COVID 19 and Beyond
Dr. Debra Lefkowitz
Children's Hospital of Philadelphia
May 13, 2020
Educational Considerations for Your Child: IEP/504 Information For Every Transplant Family
Stacy Hillenburg, M.Ed, DT
Right Start Pediatric Therapies
April 23, 2020
Financial Considerations: Top Things to Help with Transplant Finances
Rick Lofgren, MBA
Children's Organ Transplant Association
Allison Pela, BA
Phoenix Children's Hospital
April 22, 2020
COVID-19 and Pediatric Cardiomyopathy: Information and Updates
Dr. Daphne Hsu & Dr. Margaret Aldrich
Children's Hospital of Montefiore
March 31, 2020
Updates in Medical Management in Pediatric Cardiomyopathy
Dr. Beth Kaufman
Lucile Packard Children's Hospital, Stanford University
February 28, 2020
2019
Living with Pediatric Cardiomyopathy: Exercise & Sports Guidelines
Dr. Danielle Burstein
Children's Hospital of Philadelphia
December 4, 2019
Pediatric to Adult Care: Tools for Transitioning
Dr. Leigh Reardon
UCLA Children’s Hospital
September 24, 2019
Emotional Considerations for Pediatric Transplant Families
Melissa Cousino, Ph.D.
C.S. Mott Children’s Hospital
April 26, 2019
Bridging to Transplant: Heart Failure & VADs
Dr. David Peng
C.S. Mott Children’s Hospital
April 25, 2019
2018
Overview of the PANORAMA-Heart Failure Research Study
Dr. Robert Shaddy
Children's Hospital Los Angeles
December 19, 2018
Exercise and Sports in the Cardiomyopathy Patient
Dr. Sharlene Day & Dr. Rachel Lampert
University of Michigan/ Yale School of Medicine
May 15, 2018
Adherence and Transition Considerations
Diana Shellmer, Ph.D.
Children’s Hospital of Pittsburgh at UPMC
April 24, 2018
Child Life: Services and Benefits to Patients & Families
Brittany Smith, MA, CCLS
Ann & Robert H. Lurie Children’s Hospital
April 23, 2018
Overview of Pediatric Heart Transplants
Dr. Betsy Blume
Boston Children’s Hospital
March 5, 2018
2017
Coping with a Cardiomyopathy Diagnosis
Dr. Sonia Monteiro
Texas Children’s Hospital
November 30, 2017
Developments in Research & Treatment in Dilated Cardiomyopathy
Dr. Jeffrey Towbin
LeBonheur Children’s Hospital
September 21, 2017
Left Ventricular Non-compaction Cardiomyopathy in Children
Dr. John Jefferies
Cincinnati Children's Hospital
August 23, 2017
Genetic Testing for Cardiomyopathy Families
Allison Cirino, MS, LGC
Brigham & Women's Hospital
March 29, 2017
2016
Navigating Disability Benefits
Deanna Power
Disability Benefits Help
November 16, 2016
Overview of Pediatric Cardiomyopathy
Dr. Elfriede Pahl
Ann and Robert Lurie Children's Hospital
September 22, 2016
Coping with Loss
Dr. Donna Schuurman
The Dougy Center
April 5, 2016
2015
Preparing for Transplant Part 1
Preparing for Transplant Part 2
Dr. Joseph Rossano
Children’s Hospital of Philadelphia
September 15, 2015
2014
Exploring Cardiac Imaging
Dr. Brian Feingold & Dr. Timothy Wong
Children's Hospital of Pittsburgh/University of Pittsburgh Medical Center
December 8, 2014
Pediatric Cardiomyopathy 101
Dr. John Jefferies
Cincinnati Children's Hospital
September 9, 2014
Living with Chronic Illness
Dr. Anne Farrar-Anton
Joseph M. Sanzari Children's Hospital, Hackensack University Medical Center
June 17, 2014