CCF Connect Online Community
Families from around the world can discuss relevant topics and share their experience on this private online forum. Registered members can also download fact sheets, Q&A transcripts, and profiles of cardiomyopathy specialty centers. Upon registering with CCF, members are automatically invited to join CCF Connect.
Expert Q&A Sessions
Several times each year, medical and healthcare professionals are scheduled to answer questions on topics such as medications, genetic testing, activity restrictions, and psychosocial concerns. These sessions take place on CCF Connect.
CCF Family Facebook Group
In additional to CCF Connect, this Facebook discussion group provides families with another convenient platform to ask questions, discuss concerns, and share in the lives of others facing similar situations. To join the Facebook community group, click here.
Webinars featuring experts in the field are offered periodically to cover topics such as activity restrictions, transitioning to adult care, and advancements in treatment options. To view past webinars, click here.
CCF’s Ambassador Program connects new families with registered members in their area who are trained to provide resources, guidance, and support. For more information, click here.
For questions about CCF's support services, please contact CCF's Director of Family Outreach & Support.