CCF offers several programs tailored to teens and young adults, including a Facebook discussion group, buddy matching program, and Youth Ambassadors.
CCF Youth Connect
This private Facebook group was created for youth 12 and older and provides a safe place to ask questions, share experiences, and offer support. While this forum is not open to parents/guardians, it is moderated by CCF staff. To join CCF Youth Connect, click here.
Heart Buddy Program
CCF’s Heart Buddy Program connects pre-teens and teens with each other through various communication channels (phone, email, text, Skype, Face Time, Facebook). This matching program provides CCF youth members with another opportunity to connect with other teens for support and friendship. Download a CCF buddy matching form.
Transitioning to Adult Care Toolkit for Teens
CCF offers a toolkit for teenagers with cardiomyopathy to assist in making the transition from pediatric to adult care. The toolkit offers practical guidelines, a readiness assessment, medical summary form, and a sample transition plan. To download the toolkit, click here.
The CCF Youth Ambassador Program connects CCF youth with trained peers who provide guidance, support, and resources. To be assigned a Youth Ambassador or to sign up for training, contact CCF.